Tuesday, July 29, 2025

Living With Lymphedema Basically On My Own

Moving in or out

Two different residents had been moving out recently so the elevator had been getting a work out. I always feel that is when it starts to have problems. Too many trips or heavy items that hit the doors, walls and buttons? No clue. I am keeping my fingers crossed. Just in case you are new to my blog, I live in a senior living apartment building. It is for disabled residents also. There is actually a mix of ages here but leans toward older people. Presently the elevator will work good then on a random trip I will have to hit the open door for it to open. As long as it opens then I am happy. I do not think I could tolerate it well if I had to wait for the police come to open it in this hot weather. Our building management no longer runs the air conditioning in the halls and public areas. Even in this extreme hot weather. It was nice in previous years when they used to do that for us.  


The back of my apartment building

We are living in a world full of chaos and scary headlines daily.........yet living here in this apartment building it feels like none of that is happening. Most of the people here have televisions. So they must know what is going on but never speak of it. The big stories around here have to do with who is moving out and why? Who left a washing machine or dryer with cigarette butts or pet hair in the rubber filter? Unfair management rules. Who spilled something on the stairs, hall or elevator floor and did not clean it up (most likely could not clean it up because they cannot bend down to do so)? 



Senior and Disabled Living

Reasons of importance change as your health starts to decline or you just feel old. I see it happening within my own self. Problems with my knees started way back around 2001 I think. I helped take care of my mother and when I would get down on the floor to take care of her feet it was agony for me. I didn't want her to suspect so I acted like it did not hurt. It did though. Very badly. Even as my knees became worse and my feet swelled all the time, I never knew it could be a lymphatic issue. I had never heard of that. Eventually I started using a cane and soaking my feet in cold water for relief. I did not have health insurance and never had any way to pay for it. I tried to get various jobs but I think due to not being able to walk very well would not get hired even though I was qualified. 


Long drives are not good for me now!

Even now that I can go to doctors they don't seem to know much about Lymphedema. Even the Lypmphedema therapist I went to agreed about that. I had to stop going to her though because I cannot tolerate the 40 mile ride to her clinic. There needs to be more Lymphedema therapists in physical therapy clinics. They are rare. Mostly I do my own research. Reading and watching videos about it and learning the newer research and studies about it. More people have it now so doctors are specializing in it and attending conferences on it. I figure most of them are researching it online anyway so I can do that myself. 


The first pair of compression stockings bought from Amazon

The only relief I could get from it was the compression stockings. As soon as I put them on I feel instant relief. I would wear them every day without fail. Soon my leg below the knee where the stocking ended became out of shape. I took a break of more than a month of not wearing the stockings. The area below the knee did not change or go back to its normal shape. I hate it. When I have shown it to any medical person they barely gave it a glance. So I went back to wearing the stockings and I have had relief and my swelling has gone way down. Even it this hot weather. I will stick to wearing them every day from now on.




Copyright © 2025 Kathleen G. Lupole
All Photographs Copyright © 2025 Kathleen G. Lupole