Showing posts with label lymphedema. Show all posts
Showing posts with label lymphedema. Show all posts

Thursday, July 23, 2026

Life Keeps Changing As I Get Older

My Backyard

When I stopped living at Peaceful Forest and moved downtown to a small apartment I did not know what to expect. I had a lot of mobility issues. I knew I had to move and leave my marriage so I could go to a doctor. At that time I did not have health insurance and could not get any. It was out of our price range. I had absolutely no money to pay for any. When I did go to a walk-in clinic for something the young doctor there said my mobility issues was just normal aging. No real exam and no x-rays. Just a big bill with sixty dollars extra added because I did not have health insurance! So I did what I had to do. 


Doing Laundry

As much as I did not want to give up my life as a homesteading woman, I knew I had no choice. I struggled to do my chores. Washing laundry by hand was something a lot of people who read this blog romanticized. It was not by any means. It was a difficult chore for me to do. Putting my hands in ice cold water. I could not carry the water from the pump to the house to heat and then carry back outside. No, I had to use the cold water. To this day even with washing machines, I wash my personal clothing in cold water and hang to dry. Lasts much longer. I even made my own laundry soap which I do not care to do anymore. Moving here simplified my life. As you get older there are health issues that make it difficult for you to keep doing those chores that you used to do every day. When I  used to say that homesteading was not a simple life I meant it. Nor an easy one. 


Canned Ground Beef

For a long time I baked our bread letting it rise next to our big wood stove. Now I don't even eat bread. Life changes and so did my diet. When we were low on food, I could go in my pantry and create a meal out of ingredients and canned foods that I stored. It never felt like we didn't have anything to eat. Maybe not a lot of meat though I had that canned in the pantry also. I did not realize that my inflammation was most likely coming from the baked goods I was making. Lots of sugar and wheat! Two foods I no longer eat. I know so many people with serious health issues and they don't want to try to resolve their issues by giving up their beloved sugar, wheat and high carbs. I just ignore them now. It is kind of like being a Christian and watching people talk against it so they can continue doing the things they do and not have to change their ways. Well, they don't have to. Just pay the price later on. 


My Kitchen

Instead of cooking from scratch I now look for foods I can cook easily without much mess. I cannot stand in the kitchen for longer than five minutes. So I get the food started and sit back down. Keeping it on a low enough temperature so it does not burn. Back and forth is the way I cook. I call it the back and forth method! If something takes some time to prepare, like a salad, I put it on the tray I keep on the walker seat and go back to my chair. There I cut up and peel it, put it in the bowl and then wheel it back to the kitchen to finish. Washing the dishes after each meal is another big help. That way I never have to stand at the sink for a long time. I cannot even if I wanted to. 


Local Bus Transportation

Living in an apartment in a small city is easier for someone living alone and zeroing in on old age. A house has a lot of work and expenses associated with it. Like a car. I choose to live without all those headaches. To be honest though, it is not easy. Having to arrange transportation to medical appointments can be a headache. They don't always arrive on time or at all. Sometimes they just cancel you and don't even let you know. Then you miss your appointments. Even so, I could never afford a vehicle even if it was completely paid for. The repairs, preventative maintenance, insurance, registration, inspections and whatever else comes up with vehicle ownership. There are taxi cabs and the bus system available. For groceries though I normally have them delivered. It is the easiest option. 


Ready-Wrap compression garments

Right now in the middle of summer I am already looking forward to fall and cooler temperatures. I can't wait for it. Even more so this year because it has been hotter and my Lymphedema is worse. I am wearing the Velcro Ready-Wraps most of the time now. They are easier to put on but they are hotter than the compression stockings. A couple of days I skipped the compression but it resulted in more swelling. You pay for what you do. Even if you know something is not good for you for some reason you still want to do it. Human nature I guess. I keep telling myself things will get better but unfortunately they never do. So I am learning to have patience, wisdom and discipline and hope for the best.



Copyright © 2026 Kathleen G. Lupole
All Photographs Copyright © 2026 Kathleen G. Lupole







Thursday, April 23, 2026

Limit Doing Too Many Things In One Day



Today I came to the realization that I have to limit doing too many things in one day. Something as simple as taking a shower is now more complicated. Before I can shower I have to use dry brushes and brush my skin to move the lymphatic liquid under the skin. Then I can shower. After the shower I apply the Goldenseal Myrrh ointment to the skin on areas of my legs that had rashes from the Lymphedema. Then I can apply my normal body lotion. Takes longer than twenty minutes now. Okay, I can live with that as long as it is helping me........which it is. Some mornings I will have to shower later than the first thing due to other things going on. I need to be flexible. 




On the day I wash my laundry that is all I can do because I sit downstairs in the laundry room while my laundry is in the machines. Our apartment building is not one that is safe to leave your laundry alone and come back later. Sometimes you come back to nothing left in the machines. I cannot afford to do that. Usually I bring my adult coloring book and gel pens with me so I can color while waiting. Doing laundry tires me out. What tires me out the most is when I bring the laundry back to my apartment and have to put it away. That is because I have been letting it back up. Now my rule is to do small loads maybe twice a week instead of once every two weeks. Make it easier if possible.




Grocery deliveries is another chore that I like to do on a day when I don't have other things to do. I usually order early in the morning and then wait. Wait some more. Waiting for hours for them to delivery my order unless I pay for fast delivery. That makes it hard to do chores that take up more time and effort. Now I order the groceries and then while waiting I work on my computer or some other chore that I can do in my apartment. I also order groceries for my son but on a different day than when I order my groceries. 




Then there is the big chore day. When I do vacuuming, mopping, cleaning the bathroom, dusting and cleaning the counters and appliances in the kitchen. Maybe I should break those chores up into different days but once I get going I want to do them all. So it is over and done with. Turn the music on and get to work! 




Presently I am going to therapy for the Lymphedema three times a week. So on those days I am not doing much at home. I can do some little chores after I come home but these days just leaving home is a big job. Pretty soon I will not be going that often. Once a month when my Social Security check is deposited I have to do errands. I am the "Payee Representative" for my son's money so have to do errands for him also. That is another day that I am wiped out when I get back home. Not doing much on that day either. 




I don't expect to always be doing these same things for years. Who knows? Maybe not or maybe I will. Life is like that. I accept what I need or have to do. Not going to get myself down over struggles in day to day living. Try my best and carry on. I do my best to stay positive no matter what is going on. I lived with negativity for many years and I refuse to let it in my life now. When people start talking negatively I am out the door! Dwell on the good not the bad.




Copyright © 2026 Kathleen G. Lupole
All Photographs Copyright © 2026 Kathleen G. Lupole


 

Tuesday, July 29, 2025

Living With Lymphedema Basically On My Own

Moving in or out

Two different residents had been moving out recently so the elevator had been getting a work out. I always feel that is when it starts to have problems. Too many trips or heavy items that hit the doors, walls and buttons? No clue. I am keeping my fingers crossed. Just in case you are new to my blog, I live in a senior living apartment building. It is for disabled residents also. There is actually a mix of ages here but leans toward older people. Presently the elevator will work good then on a random trip I will have to hit the open door for it to open. As long as it opens then I am happy. I do not think I could tolerate it well if I had to wait for the police come to open it in this hot weather. Our building management no longer runs the air conditioning in the halls and public areas. Even in this extreme hot weather. It was nice in previous years when they used to do that for us.  


The back of my apartment building

We are living in a world full of chaos and scary headlines daily.........yet living here in this apartment building it feels like none of that is happening. Most of the people here have televisions. So they must know what is going on but never speak of it. The big stories around here have to do with who is moving out and why? Who left a washing machine or dryer with cigarette butts or pet hair in the rubber filter? Unfair management rules. Who spilled something on the stairs, hall or elevator floor and did not clean it up (most likely could not clean it up because they cannot bend down to do so)? 



Senior and Disabled Living

Reasons of importance change as your health starts to decline or you just feel old. I see it happening within my own self. Problems with my knees started way back around 2001 I think. I helped take care of my mother and when I would get down on the floor to take care of her feet it was agony for me. I didn't want her to suspect so I acted like it did not hurt. It did though. Very badly. Even as my knees became worse and my feet swelled all the time, I never knew it could be a lymphatic issue. I had never heard of that. Eventually I started using a cane and soaking my feet in cold water for relief. I did not have health insurance and never had any way to pay for it. I tried to get various jobs but I think due to not being able to walk very well would not get hired even though I was qualified. 


Long drives are not good for me now!

Even now that I can go to doctors they don't seem to know much about Lymphedema. Even the Lypmphedema therapist I went to agreed about that. I had to stop going to her though because I cannot tolerate the 40 mile ride to her clinic. There needs to be more Lymphedema therapists in physical therapy clinics. They are rare. Mostly I do my own research. Reading and watching videos about it and learning the newer research and studies about it. More people have it now so doctors are specializing in it and attending conferences on it. I figure most of them are researching it online anyway so I can do that myself. 


The first pair of compression stockings bought from Amazon

The only relief I could get from it was the compression stockings. As soon as I put them on I feel instant relief. I would wear them every day without fail. Soon my leg below the knee where the stocking ended became out of shape. I took a break of more than a month of not wearing the stockings. The area below the knee did not change or go back to its normal shape. I hate it. When I have shown it to any medical person they barely gave it a glance. So I went back to wearing the stockings and I have had relief and my swelling has gone way down. Even it this hot weather. I will stick to wearing them every day from now on.




Copyright © 2025 Kathleen G. Lupole
All Photographs Copyright © 2025 Kathleen G. Lupole


Tuesday, June 13, 2023

Living With Health Conditions

 



It would be easy for me to say that I cannot walk anymore. Just stop doing it. I don't have a disease that causes it like some people do. Though maybe Osteoarthritis is actually a disease. I consider it a condition. Lymphedema is a disease but does not actually stop me from doing things. As long as I wear the compression stockings I can walk with it. Even if my feet and calves are swelled and/or tight. If you knew me in person, you would not think I was the strongest person. Not by a long shot! My strength is the kind that is inside. Inside my brain and mind. I refuse to quit. It has been quite hard for me to accept having an aide help me with cleaning my apartment. I could see it if I had a huge house but this is a small studio apartment. Yet there are some jobs I find difficult to do. They will take me hours to complete! I have accepted having an aide and I will give her more to do as I see her ability to do what I want done.




In recent years, I have realized I do not like to go anywhere. Not social activities or events. There are many local events that go on within walking distance of my apartment. I don't go to many of them and if I do, I am in and out rather quickly. I do not like to be around cigarette smoke and it seems to be everywhere these days. Even when there is a no smoking sign I will see someone smoking right next to the sign. Either they can't read or they don't care. They act like it does not apply to them. Most smokers have no respect for others or the environment, polluting the air and littering by throwing their cigarette butts on the ground or out car windows. (I apologize to the smokers who do not do those things but the others know who they are.) So I suppose even if others do not like the smoke they will tolerate it to go to something. Well, that is not me. Breathing is important to me.




I research. That is what I do. I was one of those kids who would read a whole encyclopedia just for fun. It is one of the reasons I love the internet. So I have learned over the years since moving here how to manage the problems I have with my health. My knees are not going to get better but I can live with them. Sometimes they are not as bad as other times. Inflammation is the key and controlling it with your diet works. But.........you have to stick to it 100% and I am doing that now. Another thing I have learned is to not baby them. I walk with a walker and I am able to walk every morning in the hall outside my door. So no matter what the weather is I can do it.   




If you have a health condition, even being controlled by a doctor, it is good to do your own research and learn what you can about your condition. Ask questions and record or write down the answers. Then research it again. I never rely on anyone else and many times I tell the doctor what I want done and they usually do it. However long I am slated to live on this earth I will try to do the best I can. Many times the tests and treatments are worse than the disease or condition. It helps if you have a doctor you can totally trust but these days they are hard to find. Most are controlled by the insurance and drug companies. If they don't do what they say they won't get paid. Oh to go back to the days when the patient paid the doctors out of their own pockets and the prices weren't out of sight. That was a true doctor patient relationship!


Ribeye for supper!


What nobody tells you is that food is medicine. It matters what you put in your mouth. Look at how many people buy special foods for their pets.......spending more for better quality food. Then go to the grocery store and fill their own grocery carts with high carbs, grains, sugar, fruit and highly processed foods. Foods that hinder you instead of helping you. Of course, it does not heal you overnight but you need time to overcome whatever is wrong inside your body. Many people would rather take a prescription cocktail every day rather than give up their favorite foods. Your choice. I am not trying to influencing anyone. Just saying what has worked for me. 


LMNT Electrolyte Drink


I am trying to increase my mobility and decrease the fluid under my skin (Lymphedema). You need to figure out what you can do that helps your own health issues.Things that work for me is:

1. Keto Lifestyle (food & preparation)

2. Walking

3. Leg Massager

4. Compression Stockings

5. Lymphedema Therapist

6. Taking electrolytes (LMNT not one with sugar)

7. Increased Salt

8. Good Protein

9. Dry Brushing (before shower with a dry brush)

10. Sunshine (daily if possible)



 

Copyright © 2023 Kathleen G. Lupole
All Photographs Copyright © 2023  Kathleen G. Lupole